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General => The Common Room => Topic started by: Brickwall Demolisher on Wednesday 05 February 20 17:59 GMT (UK)
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Not sure of where putting / posting this should have gone?
Unfortunately I have to make the decision of that I am not able to continue with family history anymore. My health condition has got to a stage where research is very hard to proceed with and I feel that further research will be to much to continue with? This amount of text has taken me in excess of near on 5 hours to complete. Answering or posting requests are no more, have to finish with this, Great thanks to you for all / everyone's help. Perhaps if they can find something that improves my condition I will return,Just J
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That is sad :(
Not sure what your health condition is that stops you however is it possible that you could continue doing what you love by using one of the many softwares that are available...contact your local library, your local community education, your council and/or any local charity which supports the condition you have.
For many years I worked for Community Education and taught many people to use PC software ( and there are lots available) who had, had strokes, were blind or had cripping arthritus. Get all and any help you deserve to enable you to continue to do the things you love to do which also stops you feeling isolated as well.
Best Wishes ;D
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Oh dear BD.
That must be so difficult for you.
All good wishes
Heywood
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Very best wishes to you. :)
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Very sorry to hear you have had to give up due to your health, perhaps you can keep an interest by logging in from time to time to see what is going on
Good wishes to you for better health
Louisa Maud
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Sorry to hear you have to give up because of your health condition :'(
Best wishes to you
Rosie
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This is very sad to read and we hope that you will find something that will keep you occupied and entertained (if that's the right word) whilst you struggle with your condition. It must be incredibly tough for you to go through.
Incidentally, I did try a "morse keyboard" on my mobile phone, and I was able to tap out a message onto a screen by pressing dots and dashes on my mobile phone. Luckily I remember morse, but it is learnable. This technique is used by a number of people who have physical difficulties.
It's a Google supported project and here is a link to the project:
https://experiments.withgoogle.com/collection/morse
I wish you well and I hope that in time things will get better for you. We will be here for you if you ever are able to come back.
Take care,
Trystan
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I feel so sad for you, BD; is there anything any of us can do to help?
GS xxx
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Thanks to all for your reading of my post and suggestion/concerns.My mind/head is not all too clear at present, have no idea of how long this posting will take me to do but have started it at Fri.8.15 just to see how long it takes me with some?? breaks?? in between. I have been with/in post-stroke etc etc etc condition now since the end of 2015 and have had alongside N.H.S, Private Treatment to find of what is the continuing cause/causing of my constant health problem changing symptoms? All prescribed medications may give some help for a short period of time?, but then for some reason they seem to add more pain than than releivement?? The most appropriate diagnosis that I had was from a 20 minute Private Consultation that I had with a Specialist Stroke Doctor. Within the appointment time he informed me that my condition / Stroke? had then forwarded itself into being a Thalamus Stroke ??( Please research yourself into what the difference is of what a Thalamic is to other?? strokes?? if you want to know?) Furthering with his diagnosis he advised me that with all the medications that he could prescribe there was not one that he knew would or could help me? A Needle in a Haystack Scenerio and still looking?
Five years plus on now with my Post-stroke suffering, of which I have now to remove certain daily doings and activities, which will have to bring put more caring responsibility from my carer??
The changes in me since the end of the year are more instability, being more easily confused, chronic fatigue is more? regular, being unable to do my daily regular short walk/s on crutches or with assistance, break up of vision, my right side partial paralysis seems to be worsening along with the needles and pins accompaniment. The Total Knee Replacement that I had,five or six months before that I had my Stroke. Doctor's assessment was that the T.K.R had nothing to do with the causing of my Stroke ?? Since my stroke, for what I thought would be a quicker recovery, I joined a local well known gym. The Private Physio that have had, one was formerly a Premier Football Club Physio and the other was and still is I believe a County Cricket Club Physio. After a while with the gym I was finding it just was not enough?? Nobody was able to tell me when is too much too much and when are you not doing enough. Private accupuncture has always slightly helped me and I decided to continue with this. A session of this yesterday is what seems to have given me ( some? ) energy and hold my head and body together for the composition of this posting. As I have been trying to put together this letter since this morning,I have to stop here now. Thanks for your well wishes and hope that I am able to return back to my Family History or that I may decide to pass on all that I have acquired to another Family member.
Thank you all again for your help, I would not have got as far back without it.
Hoping the above is understandable?
Happy Hunting ,BEST REGARDS Just J.
(4.45)
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Brickwall Demolisher...well done for writing that, as far as I understand the thalamus is to relay motor and sensory signals to the cerebral cortex, which can cause you several difficulties.
If you are finding accupuncture benefical ( I use accupresure which is the same without the needles) you may want to look at TTouch and see if there is a TTouch Practitioner anywhere near you or even better a PiT ( Practitioner in Training) who wants/needs someone to practice on for their qualification and experience for the CPD case studies
PiTs have to have trained for 2yr minimum with 4 separate weeks specific training in Bath before they are called a PiT and can practice but free treatment you would just pay travel expenses
Ttouch Practitioners minimum of 6 weeks in Bath plus CPD... are allowed to charge
Most have many more years and Ttouch is very gentle and non invasive....often with amazing results, from pain management to retraining the brain to enable movement
http://www.ttouchtteam.org.uk/contact.shtml if you contract them address it to Sarah Fisher who runs UK TTouch, if she can help or refer you to a Human TTouch Practitioner or PiT locally to you she will
I am a Companion Animal TTouch Practitioner.....a friend of mine was at the time the only HumanTTouch Practitioner in the UK, lived in Scotland unfortunately she died 3yrs ago from cancer...however I don't know if others have qualified or are in training, so Sarah is the right person to ask
I wish you well ;D
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It's very clear. We all understand, but hope that you do feel you can "drop in" here, anytime. Best wishes for your future.
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You have done well to be able to type the message, I have a brother in law in a similar position and these things are tiring , so hopefully you can pop in from time to time to see what is going on, perhaps if you pass your family on we can look forward to brickwall demolisher 2 who will gave gathered knowledge from you
Take care
Louisa Maud
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Hi, and thanks to all,
For everyone who took a look at my post. I did not realise that my post of me stopping my research would have so many possible r/c's looking in. Not sure how long again that this post will take to do, but started this one 4 a.m Sat. My body clock I realise is out, sleep and awakening at the wrong times? Cannot seem for some reason to get some continual (decent's) night/s sleep?. Hence for my starting to text at this time of 4 a.m??
Before I carry on any further with with this post, do you, the R/C organiser's / controller' s want for me to be continuing using this Forum site discussing my health situation / problems or for what as it is meant for a Family History Researching?. As I have mentioned, the surprising response which I have had from you is very gratefully received I can assure you. To all you R/C' s, thank you again for you well wishing's. Will keep on continually and hopefully looking forward to "getting" / find some""treatment"" that will be able to help me returning back, as I was, to researching of my Family History and continue with it. As to when I can get back, no one can even guess at , at the present moment? My main thought is that with F / H , as to what is available / been released will always be there for researching into. All with it's mistransription's and error's??All for now, Regards Just J
(735)
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Best wishes and take care. Pop in now again when you can and keep us posted on how you are
doing. :)
If you decide to pass on all you have acquired in your Family History I am sure someone would
appreciate it.
I came to do mine when an Uncle of my Father asked me if I would take over his research as his
children were not interested. I could see that it meant so much to him that I decided I would, and
it has certainly been an interesting journey and put me firmly in touch with 'who I am'.
WhiskyMac
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This is very sad news bd ,I do hope something can be done for you soon.
Take care and do keep looking in here if you can.
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You posted at some length that you were having to stop your research.
So glad to see that you are able to join in on some of the other topics. Keep in touch with RC - so many of us enjoy the good company of others here.
FS
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You posted at some length that you were having to stop your research.
So glad to see that you are able to join in on some of the other topics. Keep in touch with RC - so many of us enjoy the good company of others here.
FS
Yes, and Brickwall Demolisher it doesn't matter how frequently or infrequently you pop in, or post - we are all friends here and are glad to see you whenever and wherever, whatever works best for you. :)
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All
I have been on recommended medication for near on five years now. My body eventually rejects the medications. With me losing one or with a mixture of , balance, loss of coordination, concentration and having to sleep and be awake at times that I don't won't to be, my right side is partially paralysed. I was right handed before the stroke and I have lost a considerable amount of its usage and I have been advised that it will may never return. If you know of the Andrew Marr political editor and of his Sunday Morning program, he had a stroke about one year before I did. I have noted and tried to follow on his recovery. I am not much different in comparison with Andrew
My private thalamic stroke Doctor advised me that my symptoms are unpredictable and it will be hard to find the right something to help with the symptoms?
With the neuropathic pain symptoms. I cannot remember what a really good night's sleep feels like.
This last occurrence has been my worst, it just hits. I am more or less housebound with this condition.I am having private treatment as I need more than what can be supplied. I am also trying to get the left hand to take over where the right hand is failing, but it's being a near on impossibility. I am not able to travel on public transport at all because of my unstability. I was advised to use a mobiity vehicle but refused it at the early stages of my stroke because my belief is if you do not use certain limbs enough you could lose the. through muscle deterioration. There are no two strokes ever the same. I did not have the F.A.C.E symptoms. I just went to bed one evening and woke up with it the following morning in November 2015.
The sufferer needs a lot of individual treatment. I have been very lucky as I have a family member who gave up their career to concentrate more time with my recovery. This they decided to do 18 months into my stroke and they have been with me ever since.
At the start of this recent offset they have put me, trialling me, on another different drug. At the moment I seem to feel that it is helping but this can only over be proven over longer time, but how long is a piece of string, that it will keep helping me or how long will It be before it turns on me.
All the other medications that I have taken for the past five years I cannot really speak as to what the different future medications will do?'
JUST J