RootsChat.Com
England (Counties as in 1851-1901) => England => Sussex => Topic started by: Chris in 1066Land on Thursday 23 August 12 10:45 BST (UK)
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Hi to all Rootschatters
Sorry to have to say but whilst away on holiday at our usual place in Bath, Somerset, I unfortunately had cause to see a local doctor whilst there as i was getting a lot of double vision and loss of energy (which i had put down to Old Age).
He diagnosed that i had "Myasthenia gravis" which is very rare as it only effects 1 in 20,000 people. Basically it means my immune system is attacking itself by corrupting/blocking the messages from my brain to the muscles causing them to weaken and waste away. Treatment is available but takes from 2 to 5 years to be effective, depending of course how far advanced it is at time of diagnosis. - so its going to be a long slow slog to get well again.
Worst part of the disease is the double vision and no strength in my jaw muscles to chew food and i even have trouble twisting the top of a cartoon of milk now
Please forgive my absence and support the fellow mods who will be temporay looking after my boards
Thank you in advance
Chris in 1066
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Hello Chris
At times like this,words just fail me.
You just think of NO1.
Take Care
Kind Regards
omega
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Sorry to hear this, Chris. How lucky you were to see a doctor who obviously knew what he was doing, especially as it wasn't your own doctor.
Hope all goes well.
Jan
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Chris,
So sorry to hear this. Your thorough research and quick responses were so much appreciated.
Take it one minute at a time - each one will be challenging.
Jann
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What rotten luck Chris. I hope the treatment gets you feeling better sooner than expected - best wishes.
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Sorry to hear that you are unwell, best wishes for a return to good health.
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Hi Chris,
So sorry to hear that you are unwell. Your priority now is to look after yourself . I look forward to hearing news of your improvement in the future. In the meantime, best wishes to you and your family,
Lesley
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Hope that the doctors can help in some way. Sending you best wishes and thanks for everything that you have done for us all.
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Take care Chris. I am sure you will be on the road to recovery soon.
Best Wishes.
Sean
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Thanks for honestly putting us in the picture Chris, not an easy or pleasant task. Take care, and wishing you a speedy return to your old self. Roy G
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Hi
Just quickly to say thankyou for your thoughts and good wishes - sorry, but it has to be short whilst my eyes are still in focus.
Chris
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Take care Chris - hope to see you back on the Board very soon!
Best wishes for a speedy recovery
Regards
Kay
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Hi Chris
We did meet at the Queens Hall Cuckfield on one of your interesting talks,
wishing you a speedy recovery and hope all goes well.
Thanks a million on all your help with my family research.
Best wishes
Sue 9
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Hi Chris:
Wishing you a speedy recovery and take care of your self.. I know what it is like to deal with a long term illness as my hubby is dealing with issues right now. But do what he is doing taking it one day at a time and behave yourself...
Take care
Anne
Canada
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Chris
Sorry to hear of your illness and I will say a prayer that you recover quickly.
Will miss your ever present help from the Sussex board, you have made it the best on Rootschat
Kerryb xx
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I`M VERY SORRY TO READ OF YOUR ILLNESS.
CAN YOU REMEMBER POSTERS WITH PICTURES OF FACES AND THE SLOGAN "GIVE US A SMILE." WELL THEY ARE ABOUT MYASTHENIA GRAVIS AND I`M SURE THERE IS A SOCIETY WHICH CAN HELP WITH ADVICE AND SUCH LKE. IT IS ALWAYS EASIER TO DEAL WITH THINGS I THINK WHEN YOU ARE IN CONTACT WITH OTHER SUFFERERS.
I HAVE A FRIEND WHOSE COMPANION HAS M.G. AND SHE CAN DRIVE AND DO A GREAT DEAL SO DON`T GET DOWN IN THE DUMPS .
ENQUIRE WHEN YOU ARE ABLE AND YOU MAY BE SURPRISED AT WHAT HELP, IF ONLY EMOTIONAL SUPPORT , ( BUT THAT IS VERY IMPORTANT )THERE IS OUT THERE.
I HOPE YOU SOON FEEL SOMEWHAT BETTER.
DON`T FORGET YOU CAN HAVE AN AMBULANCE TAKE YOU TO HOSPITAL APPOINTMENYS ETC AND ANYONE LIVING WITH YOU SHOULD CLAIM CARER`S ALLOWANCE AT LEAST.
CHEERIO AND KEEP US POSTED WHEN YOU CAN.
VIKTORIA>
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JUST BEEN ON LINE AND THE M.G ASSOCIATION IS AT:-
THE COLLEGE BUSINESS CENTRE
UTTOXETER NEW ROAD
DERBY
DE 22 3WZ
01332290219
FREEPHONE 0800 919922.
HOPE THIS IS HELPFUL. KIND R THEY WILL ADVISE HOW TO PROCEED AFTER DIAGNOSIS . KIND REGARDS.VIKTORIA
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Get well soon Chris. We will miss your wisdom & expert advice on the Sussex board :)
Jane
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Chris sorry to hear of your illness the good news is there is a cure.
stay strong